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Welcome
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Latest News

  • Join AGMD'S Chronic Intestinal Pseudo-Obstruction Telephone/Internet Group
  • Join Our AGMD Monthly Gastroparesis Telephone/Internet Group
  • AGMD Let's Talk Series Open Discussion About Being Told " It's All In Your Head"
  • AGMD Lexington, MA In-Person Educational Support Group Meets Monthly
  • New Physician Referral Updates On AGMD Website
  • Hiroshi Mashimo, MD, PhD Newest AGMD Medical/Scientific Advisor
  • AGMD Partners with REACH In Hirschsprung's Disease Awareness
Serving as a Beacon of Hope Since 1991
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Candles of Hope

Describe the photo or the page it links toThe AGMD Candles of Hope Program is our way of honoring all those impacted by digestive motility diseases and disorders.

Make a donation and light a candle in prayer, memory, or in tribute of someone. Donate now.

Join AGMD

Describe the photo or the page it links toJoin our nonprofit international organization and receive membership benefits including newsletters, networking connection program, educational materials, programs, and other resources.

Stay Informed

Describe the photo or the page it links to Join our Email Mailing List to stay up-to-date on AGMD news, programs, and events taking place.

Volunteer

Describe the photo or the page it links to A great way to get involved is to volunteer. AGMD has volunteer positions for the professional as well as the lay person. Volunteering for AGMD requires a dedicated commitment. We offer flexibility realizing that illness can be a factor. We are also respectful of time constraints of individual volunteers.

Please contact us if you are interested in volunteering.

Partner News

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A.S.P.E.N. hosts Clinical Nutrition Week January 18-21, 2014, Savannah International Convention & Trade Center, Savannah, GA. Click here to learn more.

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ThriveRX wins A.S.P.E.N. Clinical Nutrition Team of Distinction Award

To learn more about ThriveRx

Our Partners

AGMD encourages you to learn more about our corporate and organization partners and the services they provide.

Click here more information on our corporate partnership program.

A.S.P.E.N.

CoRDS Registry

Disposables Delivered

Northeast Nutritionals

Oley Foundation

ThriveRx  

CoRDS Registry

Describe the photo or the page it links toThe Coordination of Rare Diseases at Sanford registry is a national and central registry for people with a confirmed diagnosis of a rare disease.

Learn more about the Coordination of Rare Diseases at Sanford registry and enroll in their program to participate in clinical trials and other research opportunities. CoRDS Registry

Upcoming AGMD Programs

Register Today!


 

AGMD Patient, Gastroparesis, Chronic Intestinal Pseudo-Obstruction Community Groups

AGMD now holds Patient, Gastroparesis, and Chronic Intestinal Pseudo-Obstruction Telephone/Internet Support Group meetings each month. The PATIENT group is for all patients suffering from any type of digestive motility disease/disorder. We also hold special programs specifically designed for GASTROPARESIS as well as CHRONIC INTESTINAL PSEUDO-OBSTRUCTION for patients and their loved ones. It is a great way to learn, gain support, share questions and concerns and talk about personal experiences living with digestive motility diseases/disorders.

We welcome you to participate.

AGMD will be introducing other groups designed for specific types of digestive motility diseases/disorders. Next month we will be offering one for fecal incontinence.

 

AGMD "Let's Talk" Series

We invite you to participate in our, "Let's Talk" series. The program provides an open discussion focusing on various digestive motility diseases/disorders as well as specific issues impacting patients and their family members.

These discussions serve as an opportunity to learn and teach others about digestive motility diseases/disorders as well as to qualify what patients and family members go through on a daily basis.

We encourage you to participate in our open discussions and share your input on life with digestive motility diseases/disorders.

We hope you will join us! 

 

Learn About Digestive Motility

AGMD continually updates its Virtual Online Library with educational audio and video materials as well as brochures, fact sheets, clinical trials, and other resources. Visit our Virtual Motility Library to learn more. Click here to visit our updated library.

 

Need a Physician?

Are you in need of a digestive motility expert? If so, then we encourage you to visit our AGMD Physician Referral Listing Database.

Do you know of a motility expert who is not yet listed? Let us know so we can add them to our database. Any physician who would like to be included in our database is welcome to email us at digestive.motility@gmail.com.

 

Volunteer Opportunities

A great way to get involved is to volunteer. AGMD has volunteer positions for the professional as well as the lay person. Volunteering for AGMD requires a dedicated commitment. We offer flexibility realizing that illness can be a factor for patients and their families. We are also respectful of the time constraints of each individual volunteer.

Help make a difference by volunteering!

Click here if you are interested in volunteering for AGMD.

 

Newly Diagnosed?

Have you or your loved one been recently diagnosed with a digestive motility disease or disorder? If so, AGMD is here to help. We have many programs and resources available to assist you in your journey with digestive motility.

View our introductory presentation.

 

Attention All GI Physicians

Med-IQ is providing a complimentary CME online program entitled, Expert Perspectives in Individualized Contemporary Care for Short Bowel Syndrome.

Overview: This publication, summarizing a roundtable discussion with 6 faculty experts, explores current perspectives in the management of short bowel syndrome (SBS). It covers topics such as clinical consequences, patient quality of life, and therapeutic advances and is designed to help clinicians understand malnutrition concerns, appreciate the process of intestinal adaptation, and optimally individualize therapy to mitigate the clinical and quality-of-life risks associated with the long-term use of parenteral nutrition.

Accreditation/Designation Statements
Med-IQ is accredited by the Accreditation Council for Continuing Medical Education to provide continuing medical education for physicians. Med-IQ designates this enduring material for a maximum of 1.0 AMA PRA Category 1 Credit™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

Nurse practitioners, physician assistants, and other healthcare professionals who successfully complete the activity will receive a Statement of Participation indicating the maximum credits available.

For more information or to participate in the program, click here.

 

Remembering Mary Patnode

It is with overwhelming sadness that we pass along the news of the loss of Mary Patnode. Her leadership as President of the Oley Foundation Board of Directors was outstanding and she will be greatly missed.

For more details, click here.

 

Swollen Bellies

Does your abdomen become swollen/distended due to a digestive motility disease/disorder? If so, AGMD would love for you to submit a photo to be included in our "Swollen Bellies ... "photo show. It is our way of drawing more awareness, education, and understanding of what many patients experience.

Email your photos to digestive.motility@gmail.com and write, "Swollen Belly" on the subject line. AGMD reserves the right whether to accept all photos and to edit pictures in order to comply with the specifications of the photo show. By submitting your photos, you give your consent for AGMD to use them as part of all our awareness programs.

Swollen Bellies ... A Gallery of Photos Submitted by Patients - Mary-Angela DeGrazia-DiTucci

 

The Faces Of Digestive Motility Patients And Their Families

Our "Faces Of Digestive Motility Patients And Their Families" photo show, helps others realize that behind all the symptoms, all the anguish, all the daily challenges, are human beings. Although the impact of digestive motility disorders infiltrates every aspect of a patient's life as well as his/her family's, their strength, courage, determination and faith shine through.

Help us in our mission of making others understand and become aware of digestive motility diseases by submitting your photos.

Email your photos to digestive.motility@gmail.com and write, "The Faces Of Digestive Motility Patients and Their Families" on the subject line. AGMD reserves the right whether to accept all photos and to edit pictures in order to comply with the specifications of the photo show. By submitting your photos, you give your consent for AGMD to use them as part of all our awareness programs.

The Faces of Digestive Motility Patients and their Families

 

Diagnostic Blood Test For IBS Presented At 2013 ACG Annual Scientific Meeting

October 2013 - Dr. Mark Pimentel, director of the GI Motility program at Cedars Sinai Medical Center in Los Angeles, discusses the role of the gut microflora in IBS, and outlines his presentations at the American College of Gastroenterology Annual Scientific Meeting.

 

New Acupuncture Therapy Presented At DDW13

May 2013 - In this radio clip, Richard McCallum, MD discusses his study, "Self-Administered Needleless Acupuncture Therapy to Control Dyspepsia and GERD Symptoms in Patients Diagnosed with Diabetic Gastroparesis." Dr. McCallum and colleagues presented this research at DDW 2013 in Orlando, FL

 

H.R.842 Enhancement Act Bill

In an effort to bolster federal research into functional gastrointestinal and motility disorders (FGIMDs) and improve the development of innovative treatment options for these conditions, IFFGD and grassroots advocates have been working with legislators to reintroduce a bill focused on FGIMD research. We are pleased to announce that as a result of this sustained congressional outreach, the Functional Gastrointestinal and Motility Disorders Research Enhancement Act (FGIMDRE Act) has been reintroduced in the U.S. House of Representatives with bill number H.R.842. Take Action

 

Drug Shortages

Join us in signing the petition. Oley member Ann Weaver has initiated to urge Congress to end shortages.

AGMD has been receiving numerous inquiries regarding drug shortages. A major reason for these shortages has been quality/manufacturing issues. However there have been other reasons such as production delays at the manufacturer and delays companies have experienced receiving raw materials and components from suppliers. Discontinuations are another factor contributing to shortages. FDA can't require a firm to keep making a drug it wants to discontinue. Sometimes these older drugs are discontinued by companies in favor of newer, more profitable drugs.

With fewer firms making older sterile injectable drugs, there are a limited number of production lines that can make these drugs. The raw material suppliers the firms use are also limited in the amount they can make due to capacity issues at their facilities. This small number of manufacturers and limited production capacity for older sterile injectables, combined with the long lead times and complexity of the manufacturing process for injectable drugs, results in these drugs being vulnerable to shortage. When one company has a problem or discontinues, it is difficult for the remaining firms to increase production quickly and a shortage occurs.

FDA responds to potential drug shortages by taking actions to address their underlying causes and to enhance product availability. FDA determines how best to address each shortage situation based on its cause and the public health risk associated with the shortage. For updated information, visit FDA or American Society of Health-System Pharmacists

 

Veteran Advocacy Taskforce

IFFGD is putting together a taskforce of veterans affected by functional GI disorders to conduct coordinated advocacy activities. Congress is currently looking at bolstering medical research into these conditions and improving access to disability benefits. Affected veterans need to be heard so that lawmakers take appropriate action. If you know a veteran please pass along this message. If you are an affected veteran please contact IFFGD. Your story needs to be heard by Members of Congress. We'll make sure it is.

 

News from the TSA

The Association of Gastrointestinal Motility Disorders, Inc. (AGMD) is a member of the TSA Disability Coalition.

TSA Offers Special Escorts For Disabled At Orlando International Airport

TSA Cares Helps Travelers With Medical Conditions

TSA Travel Tips - Traveling With Medication

 

Join AGMD

Did you know you can still become a member of AGMD even if you cannot afford your membership dues? Just contact us at AGMD and we would be happy to waive the fee. Everyone is welcome to join our organization. Every person is important and each voice becomes stronger as we work together in drawing awareness and education others about digestive motility diseases and disorders.

 

Ongoing Campaign

AGMD is committed to its campaign entitled, "On Tract with Hope ..." We have "Gut to Get Involved, Gut to Educate, and Gut to Make Others Understand." In 1991, AGMD was created as an international nonprofit organization bringing patients, family members, and those in the medical, scientific, and nutritional areas together. It is a privilege to serve and provide our ongoing campaign so more people will learn, understand, and become aware of this specialized area of gastroenterology.

 

AGMD Global Mission

AGMD understands the loneliness and isolation that patients and their families can feel. We understand the concerns, frustrations, and the emotional roller coaster that can accompany life with digestive motility diseases and disorders. We believe that education is key to empowering the motility patient as well as his/her family. We also believe that support is critical in helping the patient and his/her family cope. That is why we remain on a global mission of hope and help for all those in need.

 

AGMD Digestive Motility Impact

In one-second, someone's life will be changed and affected by a digestive motility disease or disorder. Symptoms are usually absent from comfortable social conversations and yet, they are very real and paramount in the sufferer's life. It can be challenging to balance all the emotional and physical consequences that may result from living with digestive motility diseases and disorders. Not being able to eat normally, maintaining employment, raising children, finding and keeping relationships, going to school, medical insurance issues, financial difficulties, and trying to live a quality life may all be a part of the patient and family member's struggles. Many feel very much alone, isolated, and frustrated because no one can understand what they are going through. It is the quest of AGMD to provide education, information, resources, support, and hope to all those impacted by digestive motility diseases and disorders.

 

This page was last modified on April 23, 2014

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