Welcome
Welcome
image1 image2 image3 image4

Heading 1

This is an example of the content for a specific image in the Nivo slider. Provide a short description of the image here....

Heading 2

This is an example of the content for a specific image in the Nivo slider. Provide a short description of the image here....

Heading 3

This is an example of the content for a specific image in the Nivo slider. Provide a short description of the image here....

Heading 4

This is an example of the content for a specific image in the Nivo slider. Provide a short description of the image here....

Welcome
themed object

Latest News

  • Join AGMD'S Chronic Intestinal Pseudo-Obstruction Telephone/Internet Group
  • Join Our AGMD Monthly Gastroparesis Telephone/Internet Group
  • AGMD Let's Talk Series Open Discussion About Being Told " It's All In Your Head"
  • AGMD Lexington, MA In-Person Educational Support Group Meets Monthly
  • New Physician Referral Updates On AGMD Website
  • Hiroshi Mashimo, MD, PhD Newest AGMD Medical/Scientific Advisor
  • AGMD Partners with REACH In Hirschsprung's Disease Awareness
Serving as a Beacon of Hope Since 1991
get in touch

Header Content Region

Insert text, image or banner ads here, or just delete this text and leave this area blank!

Behind the Scenes

 

Making an Impact

 

Their World

 

 

Login

Forgot your password?

HON

We comply with the HONcode standard for trustworthy health
information:
verify here.

 

 

 

Candles of Hope

Describe the photo or the page it links toThe AGMD Candles of Hope Program is our way of honoring all those impacted by digestive motility diseases and disorders.

Make a donation and light a candle in prayer, memory, or in tribute of someone. Donate now.

Join AGMD

Describe the photo or the page it links toJoin our nonprofit international organization and receive membership benefits including newsletters, networking connection program, educational materials, programs, and other resources.

Stay Informed

Describe the photo or the page it links to Join our Email Mailing List to stay up-to-date on AGMD news, programs, and events taking place.

Volunteer

Describe the photo or the page it links to A great way to get involved is to volunteer. AGMD has volunteer positions for the professional as well as the lay person. Volunteering for AGMD requires a dedicated commitment. We offer flexibility realizing that illness can be a factor. We are also respectful of time constraints of individual volunteers.

Please contact us if you are interested in volunteering.

Clinical Trials

Describe the photo or the page it links to

Visit our Clinical Trials Page to learn more about trials that are currently recruiting participants.

Our Partners

AGMD encourages you to learn more about our corporate and organization partners and the services they provide.

Click here more information on our corporate partnership program.

A.S.P.E.N.

CoRDS Registry

Disposables Delivered

Northeast Nutritionals

Oley Foundation

ThriveRx  

CoRDS Registry

Describe the photo or the page it links toThe Coordination of Rare Diseases at Sanford registry is a national and central registry for people with a confirmed diagnosis of a rare disease.

Learn more about the Coordination of Rare Diseases at Sanford registry and enroll in their program to participate in clinical trials and other research opportunities. CoRDS Registry

AGMD Upcoming Events

 

AGMD Patient/Loved Ones Telephone/Internet Community Support Groups

AGMD holds monthly digestive motility Telephone/Internet Digestive Motility Community Support Groups. Our patient group is for all those suffering from any type of digestive motility disease/disorder. We also hold special programs specifically designed for gastroparesis, chronic intestinal pseudo-obstruction, IBS, incontinence, and esophageal disorders, which are open to patients and their loved ones. It is a great way to learn, gain support, share questions and concerns and talk about personal experiences living with digestive motility diseases/disorders. View our calendar above for upcoming program dates and times.

We welcome you to participate.

 

AGMD Let's Talk Open Discussion Series

We invite you to participate in our, "Let's Talk" series. The program provides an open discussion focusing on various digestive motility diseases/disorders as well as specific issues impacting patients and their family members.

These discussions serve as an opportunity to learn and teach others about digestive motility diseases/disorders as well as to qualify what patients and family members go through on a daily basis.

We encourage you to participate in our open discussions and share your input on life with digestive motility diseases/disorders.

We hope you will join us! 

 

Lisa Aponte Featured in AGMD Live Interview

Meet Lisa Aponte, a 45 year old fecal incontinent patient who is a life-long resident of Massachusetts.

Lisa is the mother of a 23 year old and has been married for five years.  She worked as a Project Coordinator at Bose Corporation for 19 years until she had to take a leave of absence due to health issues.  She was let go in 2012. Lisa then had to apply for disability which was very long and hard process.  She enjoys crafts, dancing and riding a motorcycle when life permits.

Lisa's health issues started when she had a fissure and needed to have surgery in order to repair it.  In 2011, she developed a perirectal abscess which formed a fistula and then required another surgery.  Even before the 2nd surgery she began to experience incontinence which was affecting her life.  She worked for a year like that in spite of getting painful and uncomfortable rashes.  She could not even think straight as her job entailed sitting all day and attending meetings. 

She eventually realized that she had to take some time to figure out what the problem was.  She met with many doctors and was referred to Biofeedback PT for 14 weeks.  Unfortunately, the Biofeedback did not help much so her only other options were to have a colostomy or try a new technology that had just been FDA approved in 2011 for fecal incontinence.  Lisa chose to try the Interstim Sacral Nerve Stimulator, which unfortunately, did not alleviate her problem.  She kept it implanted for a year and ultimately, had it removed.  She still has the incontinence and has learned so much relating to her incontinence. Lisa is still in the process of acceptance and what her new norm is. Right now she takes it one day at a time.

As a result of her difficult journey, Lisa is committed to helping others and drawing a greater awareness to fecal incontinence.

 

Learn About Digestive Motility

AGMD continually updates its Virtual Online Library with educational audio and video materials as well as brochures, fact sheets, clinical trials, and other resources. Visit our Virtual Motility Library to learn more. Click here to visit our updated library.

 

Need a Physician?

Are you in need of a digestive motility expert? If so, then we encourage you to visit our AGMD Physician Referral Listing Database.

Do you know of a motility expert who is not yet listed? Let us know so we can add them to our database. Any physician who would like to be included in our database is welcome to email us at digestive.motility@gmail.com.

 

Join AGMD

Did you know you can still become a member of AGMD even if you cannot afford your membership dues? Just contact us at AGMD and we would be happy to waive the fee. Everyone is welcome to join our organization. Every person is important and each voice becomes stronger as we work together in drawing awareness and education others about digestive motility diseases and disorders.

 

Volunteer Opportunities

A great way to get involved is to volunteer. AGMD has volunteer positions for the professional as well as the lay person. Volunteering for AGMD requires a dedicated commitment. We offer flexibility realizing that illness can be a factor for patients and their families. We are also respectful of the time constraints of each individual volunteer.

Help make a difference by volunteering!

Click here if you are interested in volunteering for AGMD.

 

Newly Diagnosed?

Have you or your loved one been recently diagnosed with a digestive motility disease or disorder? If so, AGMD is here to help. We have many programs and resources available to assist you in your journey with digestive motility.

View our introductory presentation.

 

Upcoming Related Conferences/Symposia

Oley Regional Conference: What's Current with Home Parental and Enteral Nutrition, Saturday, October 25th, 9-4, Rhode Island

 

Attention All GI Physicians

Med-IQ is providing a complimentary CME online program entitled, Navigating the Challenges of Moderate-to-Servere Ulcerative Colitis: Exploring Treatment Approaches for Optimal Patient Outcomes

Faculty

Stephen B. Hanauer, MD
Professor in Medicine
Northwestern University Feinberg School of Medicine
Medical Director, Digestive Health Center
Northwestern Medicine, Chicago, IL

William J. Sandborn, MD
Professor of Medicine and Adjunct Professor of Surgery
Chief, Division of Gastroenterology
Director, UCSD IBD Center
University of California San Diego and UC San Diego Health System, San Diego, CA

Overview: This dynamic online publication explores the available evidence base for the optimal management of moderate-to-severe ulcerative colitis. It also includes Web-enabled video clips that feature expert faculty discussing practical treatment strategies and clinical perspectives. These video enhancements reinforce key educational points made throughout the activity, as well as facilitate the translation of clinical evidence that supports evolving disease management goals and expanding treatment options to routine practice.

Accreditation/Designation Statements
Med-IQ is accredited by the Accreditation Council for Continuing Medical Education to provide continuing medical education for physicians. Med-IQ designates this enduring material for a maximum of 1.0 AMA PRA Category 1 Credit™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

Nurse practitioners, physician assistants, and other healthcare professionals who successfully complete the activity will receive a Statement of Participation indicating the maximum credits available.

For more information or to participate in the program, click here.

 

Med-IQ is providing a complimentary CME online program entitled, Expert Perspectives in Individualized Contemporary Care for Short Bowel Syndrome.

Overview: This publication, summarizing a roundtable discussion with 6 faculty experts, explores current perspectives in the management of short bowel syndrome (SBS). It covers topics such as clinical consequences, patient quality of life, and therapeutic advances and is designed to help clinicians understand malnutrition concerns, appreciate the process of intestinal adaptation, and optimally individualize therapy to mitigate the clinical and quality-of-life risks associated with the long-term use of parenteral nutrition.

Accreditation/Designation Statements
Med-IQ is accredited by the Accreditation Council for Continuing Medical Education to provide continuing medical education for physicians. Med-IQ designates this enduring material for a maximum of 1.0 AMA PRA Category 1 Credit™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

Nurse practitioners, physician assistants, and other healthcare professionals who successfully complete the activity will receive a Statement of Participation indicating the maximum credits available.

For more information or to participate in the program, click here.

 

Swollen Bellies

Does your abdomen become swollen/distended due to a digestive motility disease/disorder? If so, AGMD would love for you to submit a photo to be included in our "Swollen Bellies ... "photo show. It is our way of drawing more awareness, education, and understanding of what many patients experience.

Email your photos to digestive.motility@gmail.com and write, "Swollen Belly" on the subject line. AGMD reserves the right whether to accept all photos and to edit pictures in order to comply with the specifications of the photo show. By submitting your photos, you give your consent for AGMD to use them as part of all our awareness programs.

Swollen Bellies ... A Gallery of Photos Submitted by Patients - Mary-Angela DeGrazia-DiTucci

 

The Faces Of Digestive Motility Patients And Their Families

Our "Faces Of Digestive Motility Patients And Their Families" photo show, helps others realize that behind all the symptoms, all the anguish, all the daily challenges, are human beings. Although the impact of digestive motility disorders infiltrates every aspect of a patient's life as well as his/her family's, their strength, courage, determination and faith shine through.

Help us in our mission of making others understand and become aware of digestive motility diseases by submitting your photos.

Email your photos to digestive.motility@gmail.com and write, "The Faces Of Digestive Motility Patients and Their Families" on the subject line. AGMD reserves the right whether to accept all photos and to edit pictures in order to comply with the specifications of the photo show. By submitting your photos, you give your consent for AGMD to use them as part of all our awareness programs.

The Faces of Digestive Motility Patients and their Families

 

Drug Shortages

Join us in signing the petition. Oley member Ann Weaver has initiated to urge Congress to end shortages.

FDA responds to potential drug shortages by taking actions to address their underlying causes and to enhance product availability. FDA determines how best to address each shortage situation based on its cause and the public health risk associated with the shortage. For updated information, visit FDA or American Society of Health-System Pharmacists

 

News from the TSA

The Association of Gastrointestinal Motility Disorders, Inc. (AGMD) is a member of the TSA Disability Coalition.

TSA Offers Special Escorts For Disabled At Orlando International Airport

TSA Cares Helps Travelers With Medical Conditions

TSA Travel Tips - Traveling With Medication

 

Ongoing Campaign

AGMD is committed to its campaign entitled, "On Tract with Hope ..." We have "Gut to Get Involved, Gut to Educate, and Gut to Make Others Understand." In 1991, AGMD was created as an international nonprofit organization bringing patients, family members, and those in the medical, scientific, and nutritional areas together. It is a privilege to serve and provide our ongoing campaign so more people will learn, understand, and become aware of this specialized area of gastroenterology.

 

AGMD Global Mission

AGMD understands the loneliness and isolation that patients and their families can feel. We understand the concerns, frustrations, and the emotional roller coaster that can accompany life with digestive motility diseases and disorders. We believe that education is key to empowering the motility patient as well as his/her family. We also believe that support is critical in helping the patient and his/her family cope. That is why we remain on a global mission of hope and help for all those in need.

 

AGMD Digestive Motility Impact

In one-second, someone's life will be changed and affected by a digestive motility disease or disorder. Symptoms are usually absent from comfortable social conversations and yet, they are very real and paramount in the sufferer's life. It can be challenging to balance all the emotional and physical consequences that may result from living with digestive motility diseases and disorders. Not being able to eat normally, maintaining employment, raising children, finding and keeping relationships, going to school, medical insurance issues, financial difficulties, and trying to live a quality life may all be a part of the patient and family member's struggles. Many feel very much alone, isolated, and frustrated because no one can understand what they are going through. It is the quest of AGMD to provide education, information, resources, support, and hope to all those impacted by digestive motility diseases and disorders.

 

This page was last modified on October 20, 2014

back to top

Copyright 2014