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Learn more about the Coordination of Rare Diseases at Sanford registry and enroll in their program to participate in clinical trials and other research opportunities. CoRDS Registry
AGMD Upcoming Events
- Learn from experts in the field of pediatric and adult digestive motility disorders
- Listen to patients and family members share their insights and experiences living with digestive motility disorders
- Network with other patients and family members
- Be inspired
The purpose of the conference is to provide education about digestive motility disorders affecting pediatric and adult patients, to shed light on the impact of digestive motility disorders on family members, and to offer insight from the patient's perspective on living with digestive motility diseases and disorders.
The program will include presentations on topics important to patients of all ages and their families. There will be ample time to address questions to our experts and meet with other patients, family members and caregivers.
Twenty Five Year Milestone
AGMD has been honored to serve as a "Beacon of Hope" for 25 years! Thank you all for your support of our organization. You are the force behind AGMD and we are grateful to each and everyone of you!
Swollen and Wounded Bellies - Part One
View a glimpse of some swollen and wounded bellies as a result of digestive motility disorders. These are just some examples of the hidden reality of what patients may endure.
Genetic Neuronal Dysplasia or Chronic Intestinal Pseudo-Obstruction Study
Columbia University Medical Center is investigating the genetic causes of intestinal neuronal dysplasia and chronic intestinal pseudo-obstruction.
If you as well as other family members have been diagnosed with either disease and would like to participate in Columbia’s research study, please contact the Association of Gastrointestinal Motility Disorders, Inc. (AGMD). Your involvement might help researchers to develop better treatment for these GI illnesses.
AGMD Contact Information
Telephone: (781) 275-1300
Help AGMD Continue Its Mission
" In one moment, someone's life will be changed because of a digestive motility disorder." These disorders can affect anyone at any age and occur at any time. The extreme and unpredictable symptoms can impact every aspect of the patient's life. The families of these patients are also greatly affected.
Many patients and their families endure a roller coaster of emotions as they struggle to live a life that involves the inability to eat normally, bathroom issues, and the mourning of the many losses that come from living with these often debilitating digestive disorders.
AGMD has been serving as a "Beacon of Hope" since 1991. Patients and their families rely on our nonprofit for much needed support, information, education, awareness, guidance and resources.
We hope you will remember AGMD with your generosity. When you donate, you will be making an incredible difference in the lives of those in need.
Ways to help
- Smile Amazon
- Crickets Flowers and Gifts
- PayPal Giving Fund
AGMD Patient/Loved Ones Telephone/Internet Community Support Groups
AGMD holds digestive motility Telephone/Internet Digestive Motility Community Support Groups. Our Patient Group is for all those suffering from any type of digestive motility disease/disorder. We also hold special programs specifically designed for Gastroparesis, Motility Disorders of the Esophagus, Chronic Intestinal Pseudo-Obstruction and Incontinence, which are open to patients and their loved ones. In addition, we have a program customized for parents. It is a great way to learn, gain support, share questions and concerns and talk about personal experiences living with digestive motility diseases/disorders.
New Young Adult, Spouse, Senior Citizen, and Newly Diagnosed groups will be implemented within the coming months.
We welcome you to participate.
AGMD Young Adult Telephone/Internet Community Support Group
Join our AGMD Young Adult Telephone/Internet Community Support Group.
Our Young Adult group is open to those 18-35 years of age suffering from a digestive motility disease or disorder.
Andrew is our facilitator of the group. He has chronic intestinal pseudo-obstruction, gastroparesis, GERD, bladder retention, an enlarged stomach and small bowel bacterial overgrowth. He is also an Industrial Designer, Commercial Aerosol Artist, AGMD Volunteer Mentor and is a talented creator of photo/slide shows for our organization depicting life with digestive motility disorders.
Learn, share experiences, pose questions and concerns and gain much needed support.
View Andrew's original video entitled, "Poem of Gratitude" where he shares some of the many blessings in his life
View Andrew's original video entitled, "Life Revolves Around Food" through his artistic talent.
Andrew Carbone, a young adult patient with CIPO, gastroparesis, GERD, bladder retention, an enlarged stomach and SBBO shares his artistic talent in describing life with digestive motility disorders and how so much revolves around food.
Functional Gastrointestinal and Motility Disorders Research Enhancement Act of 2015
This bill was assigned to a congressional committee on May 13, 2015, which will consider it before possibly sending it on to the House or Senate as a whole.
Introduced: May 13, 2015 (114th Congress, 2015-2017)
Sponsor: Rep. James Sensenbrenner Jr. [R-WI5]
Status: Referred to Committee
Text: Read Bill Text » (9 pages)
Need a Physician?
Are you in need of a digestive motility expert? If so, then we encourage you to visit our AGMD Physician Referral Listing Database.
Do you know of a motility expert who is not yet listed? Let us know so we can add them to our database. Any physician who would like to be included in our database is welcome to email us at email@example.com.
A great way to get involved is to volunteer. AGMD has volunteer positions for the professional as well as the lay person. Volunteering for AGMD requires a dedicated commitment. We offer flexibility realizing that illness can be a factor for patients and their families. We are also respectful of the time constraints of each individual volunteer.
Help make a difference by volunteering!
Have you or your loved one been recently diagnosed with a digestive motility disease or disorder? If so, AGMD is here to help. We have many programs and resources available to assist you in your journey with digestive motility.
Upcoming Related Conferences/Symposia
If you would like your conference/symposium posted, please mail your information to firstname.lastname@example.org.
AGMD Digestive Motility Patient and Family Conference, July 29-30, 2016, Doubletree Bedford Glen Hotel, 44 Middlesex Turnpike, Bedford, Massachusetts
Swollen And Wounded Bellies
Does your abdomen become swollen/distended due to a digestive motility disease/disorder? If so, AGMD would love for you to submit a photo to be included in our "Swollen Bellies ... "photo show. It is our way of drawing more awareness, education, and understanding of what many patients experience.
Email your photos to email@example.com and write, "Swollen Belly" on the subject line. AGMD reserves the right whether to accept all photos and to edit pictures in order to comply with the specifications of the photo show. By submitting your photos, you give your consent for AGMD to use them as part of all our awareness programs.
The Faces Of Digestive Motility Patients And Their Families
Our "Faces Of Digestive Motility Patients And Their Families" photo show, helps others realize that behind all the symptoms, all the anguish, all the daily challenges, are human beings. Although the impact of digestive motility disorders infiltrates every aspect of a patient's life as well as his/her family's, their strength, courage, determination and faith shine through.
Help us in our mission of making others understand and become aware of digestive motility diseases by submitting your photos.
Email your photos to firstname.lastname@example.org and write, "The Faces Of Digestive Motility Patients and Their Families" on the subject line. AGMD reserves the right whether to accept all photos and to edit pictures in order to comply with the specifications of the photo show. By submitting your photos, you give your consent for AGMD to use them as part of all our awareness programs.
AGMD is committed to its campaign entitled, "On Tract with Hope ..." We have "Gut to Get Involved, Gut to Educate, and Gut to Make Others Understand." In 1991, AGMD was created as an international nonprofit organization bringing patients, family members, and those in the medical, scientific, and nutritional areas together. It is a privilege to serve and provide our ongoing campaign so more people will learn, understand, and become aware of this specialized area of gastroenterology.
AGMD Global Mission
AGMD understands the loneliness and isolation that patients and their families can feel. We understand the concerns, frustrations, and the emotional roller coaster that can accompany life with digestive motility diseases and disorders. We believe that education is key to empowering the motility patient as well as his/her family. We also believe that support is critical in helping the patient and his/her family cope. That is why we remain on a global mission of hope and help for all those in need.
AGMD Digestive Motility Impact
In one-second, someone's life will be changed and affected by a digestive motility disease or disorder. Symptoms are usually absent from comfortable social conversations and yet, they are very real and paramount in the sufferer's life. It can be challenging to balance all the emotional and physical consequences that may result from living with digestive motility diseases and disorders. Not being able to eat normally, maintaining employment, raising children, finding and keeping relationships, going to school, medical insurance issues, financial difficulties, and trying to live a quality life may all be a part of the patient and family member's struggles. Many feel very much alone, isolated, and frustrated because no one can understand what they are going through. It is the quest of AGMD to provide education, information, resources, support, and hope to all those impacted by digestive motility diseases and disorders.
This page was last modified on May 6, 2016