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Welcome
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Latest News

  • Join AGMD'S Monthly Patient and Motility Specific Telephone/Internet Groups
  • AGMD Lexington, MA In-Person Educational Support Group Meets Monthly
  • AGMD Let's Talk Series Open Discussion: " Judging By How We Look"
Serving as a Beacon of Hope Since 1991
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Candles of Hope

Describe the photo or the page it links toThe AGMD Candles of Hope Program is our way of honoring all those impacted by digestive motility diseases and disorders.

Make a donation and light a candle in prayer, memory, or in tribute of someone. Donate now.

Join AGMD

Describe the photo or the page it links toJoin our nonprofit international organization and receive membership benefits including newsletters, networking connection program, educational materials, programs, and other resources.

Stay Informed

Describe the photo or the page it links to Join our Email Mailing List to stay up-to-date on AGMD news, programs, and events taking place.

Volunteer

Describe the photo or the page it links to A great way to get involved is to volunteer. AGMD has volunteer positions for the professional as well as the lay person. Volunteering for AGMD requires a dedicated commitment. We offer flexibility realizing that illness can be a factor. We are also respectful of time constraints of individual volunteers.

Please contact us if you are interested in volunteering.

Clinical Trials

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Visit our Clinical Trials Page to learn more about trials that are currently recruiting participants.

Our Partners

AGMD encourages you to learn more about our corporate and organization partners and the services they provide.

Click here more information on our corporate partnership program.

A.S.P.E.N.

CoRDS Registry

Disposables Delivered

Northeast Nutritionals

Oley Foundation

ThriveRx  

CoRDS Registry

Describe the photo or the page it links toThe Coordination of Rare Diseases at Sanford registry is a national and central registry for people with a confirmed diagnosis of a rare disease.

Learn more about the Coordination of Rare Diseases at Sanford registry and enroll in their program to participate in clinical trials and other research opportunities. CoRDS Registry

AGMD Upcoming Events

 

Help AGMD Continue It's Mission

" In one moment, someone's life will be changed because of a digestive motility disorder." These disorders can affect anyone at any age and occur at any time. The extreme and unpredictable symptoms can impact every aspect of the patient's life. The families of these patients are also greatly affected.

Many patients and their families endure a roller coaster of emotions as they struggle to live a life that involves the inability to eat normally, bathroom issues, and the mourning of the many losses that come from living with these often debilitating digestive disorders.

AGMD has been serving as a "Beacon of Hope" since 1991. Patients and their families rely on our nonprofit for much needed support, information, education, awareness, guidance and resources.

We hope you will remember AGMD with your generosity. When you donate, you will be making an incredible difference in the lives of those in need.

 

AGMD Patient/Loved Ones Telephone/Internet Community Support Groups

AGMD holds monthly digestive motility Telephone/Internet Digestive Motility Community Support Groups. Our Patient Group is for all those suffering from any type of digestive motility disease/disorder. We also hold special programs specifically designed for Gastroparesis, Chronic Intestinal Pseudo-Obstruction and Incontinence, which are open to patients and their loved ones. It is a great way to learn, gain support, share questions and concerns and talk about personal experiences living with digestive motility diseases/disorders.

View our calendar above for upcoming program dates and times.

We welcome you to participate.

 

AGMD Inspiring Patient/Caregiver Program

AGMD is proud to present our Inspiring Patient/Caregiver Series. Each month, our organization will be featuring a digestive motility patient or a caregiver, who exemplifies courage, determination and strength.

This month, AGMD will be featuring Julie Martinez, a parent of a child named Elise, who suffers from chronic intestinal pseudo-obstruction.

During the program, Julie will chronicle her moving story and will also read some poignant excerpts from her upcoming book.

"Our health is the greatest of gifts in life ... mental and physical health. A gift we often take for granted that hangs on a thin thread of uncertainty. The smallest thing can make the strand snap, leaving even the strongest feeling helpless. In that ... hope is the only protector." (Quoted from Julie's book.)

Any parent, patient or caregiver will find this program to be greatly inspiring and educational.

Julie lives with her husband of 25 years and their 14-year-old daughter Elise. She worked 13 years in the medical field and currently works part-time at a nonprofit HUD agency as a housing counselor-advocator and instructor on financial education and assistance programs for homeowners, especially in cases of hardship. Julie has turned her passion into authoring a soon to be published book and volunteering for AGMD to educate and draw more awareness of CIPO and many of the challenges that are endured by those impacted by chronic illness.

Would you like to be considered for one of our inspirational features? Or do you know of someone who you feel should be considered? Email us with a brief summary.

 

Member Spotlight - Lisa Aponte

Meet Lisa Aponte, a 45 year old fecal incontinent patient who is a life-long resident of Massachusetts.

Lisa is the mother of a 23 year old and has been married for five years.  She worked as a Project Coordinator at Bose Corporation for 19 years until she had to take a leave of absence due to health issues.  She was let go in 2012. Lisa then had to apply for disability which was very long and hard process.  She enjoys crafts, dancing and riding a motorcycle when life permits.

Lisa's health issues started when she had a fissure and needed to have surgery in order to repair it.  In 2011, she developed a perirectal abscess which formed a fistula and then required another surgery.  Even before the 2nd surgery she began to experience incontinence which was affecting her life.  She worked for a year like that in spite of getting painful and uncomfortable rashes.  She could not even think straight as her job entailed sitting all day and attending meetings. 

She eventually realized that she had to take some time to figure out what the problem was.  She met with many doctors and was referred to Biofeedback PT for 14 weeks.  Unfortunately, the Biofeedback did not help much so her only other options were to have a colostomy or try a new technology that had just been FDA approved in 2011 for fecal incontinence.  Lisa chose to try the Interstim Sacral Nerve Stimulator, which unfortunately, did not alleviate her problem.  She kept it implanted for a year and ultimately, had it removed.  She still has the incontinence and has learned so much relating to her incontinence. Lisa is still in the process of acceptance and what her new norm is. Right now she takes it one day at a time.

As a result of her difficult journey, Lisa is committed to helping others and drawing a greater awareness to fecal incontinence.

 

Learn About Digestive Motility

AGMD continually updates its Virtual Online Library with educational audio and video materials as well as brochures, fact sheets, clinical trials, and other resources. Visit our Virtual Motility Library to learn more. Click here to visit our updated library.

 

Need a Physician?

Are you in need of a digestive motility expert? If so, then we encourage you to visit our AGMD Physician Referral Listing Database.

Do you know of a motility expert who is not yet listed? Let us know so we can add them to our database. Any physician who would like to be included in our database is welcome to email us at digestive.motility@gmail.com.

 

Join AGMD

Did you know you can still become a member of AGMD even if you cannot afford your membership dues? Just contact us at AGMD and we would be happy to waive the fee. Everyone is welcome to join our organization. Every person is important and each voice becomes stronger as we work together in drawing awareness and education others about digestive motility diseases and disorders.

 

Volunteer Opportunities

A great way to get involved is to volunteer. AGMD has volunteer positions for the professional as well as the lay person. Volunteering for AGMD requires a dedicated commitment. We offer flexibility realizing that illness can be a factor for patients and their families. We are also respectful of the time constraints of each individual volunteer.

Help make a difference by volunteering!

Click here if you are interested in volunteering for AGMD.

 

Newly Diagnosed?

Have you or your loved one been recently diagnosed with a digestive motility disease or disorder? If so, AGMD is here to help. We have many programs and resources available to assist you in your journey with digestive motility.

View our introductory presentation.

 

New Device For Gastroparesis At Temple Hospital

 

Upcoming Related Conferences/Symposia

Second Annual Digestive Diseases: New Advances - A continuing medical education conference, taking place June 12-13, 2015 in Philadelphia, PA.

 

The Oley Annual Conference will be taking place June 29th-July 3rd in Saratoga Springs, New York.

 

International Conference and Exhibition on Gastrointestinal Therapies taking place August 25-27, 2015 in Valencia, Spain.

 

Attention All GI Physicians

Med-IQ is providing a complimentary CME online program entitled, Navigating the Challenges of Moderate-to-Servere Ulcerative Colitis: Exploring Treatment Approaches for Optimal Patient Outcomes

Faculty

Stephen B. Hanauer, MD
Professor in Medicine
Northwestern University Feinberg School of Medicine
Medical Director, Digestive Health Center
Northwestern Medicine, Chicago, IL

William J. Sandborn, MD
Professor of Medicine and Adjunct Professor of Surgery
Chief, Division of Gastroenterology
Director, UCSD IBD Center
University of California San Diego and UC San Diego Health System, San Diego, CA

Overview: This dynamic online publication explores the available evidence base for the optimal management of moderate-to-severe ulcerative colitis. It also includes Web-enabled video clips that feature expert faculty discussing practical treatment strategies and clinical perspectives. These video enhancements reinforce key educational points made throughout the activity, as well as facilitate the translation of clinical evidence that supports evolving disease management goals and expanding treatment options to routine practice.

Accreditation/Designation Statements
Med-IQ is accredited by the Accreditation Council for Continuing Medical Education to provide continuing medical education for physicians. Med-IQ designates this enduring material for a maximum of 1.0 AMA PRA Category 1 Credit™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

Nurse practitioners, physician assistants, and other healthcare professionals who successfully complete the activity will receive a Statement of Participation indicating the maximum credits available.

For more information or to participate in the program, click here.

 

Med-IQ is providing a complimentary CME online program entitled, Expert Perspectives in Individualized Contemporary Care for Short Bowel Syndrome.

Overview: This publication, summarizing a roundtable discussion with 6 faculty experts, explores current perspectives in the management of short bowel syndrome (SBS). It covers topics such as clinical consequences, patient quality of life, and therapeutic advances and is designed to help clinicians understand malnutrition concerns, appreciate the process of intestinal adaptation, and optimally individualize therapy to mitigate the clinical and quality-of-life risks associated with the long-term use of parenteral nutrition.

Accreditation/Designation Statements
Med-IQ is accredited by the Accreditation Council for Continuing Medical Education to provide continuing medical education for physicians. Med-IQ designates this enduring material for a maximum of 1.0 AMA PRA Category 1 Credit™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

Nurse practitioners, physician assistants, and other healthcare professionals who successfully complete the activity will receive a Statement of Participation indicating the maximum credits available.

For more information or to participate in the program, click here.

 

Swollen Bellies

Does your abdomen become swollen/distended due to a digestive motility disease/disorder? If so, AGMD would love for you to submit a photo to be included in our "Swollen Bellies ... "photo show. It is our way of drawing more awareness, education, and understanding of what many patients experience.

Email your photos to digestive.motility@gmail.com and write, "Swollen Belly" on the subject line. AGMD reserves the right whether to accept all photos and to edit pictures in order to comply with the specifications of the photo show. By submitting your photos, you give your consent for AGMD to use them as part of all our awareness programs.

Swollen Bellies ... A Gallery of Photos Submitted by Patients - Maryangela DeGrazia-DiTucci

 

The Faces Of Digestive Motility Patients And Their Families

Our "Faces Of Digestive Motility Patients And Their Families" photo show, helps others realize that behind all the symptoms, all the anguish, all the daily challenges, are human beings. Although the impact of digestive motility disorders infiltrates every aspect of a patient's life as well as his/her family's, their strength, courage, determination and faith shine through.

Help us in our mission of making others understand and become aware of digestive motility diseases by submitting your photos.

Email your photos to digestive.motility@gmail.com and write, "The Faces Of Digestive Motility Patients and Their Families" on the subject line. AGMD reserves the right whether to accept all photos and to edit pictures in order to comply with the specifications of the photo show. By submitting your photos, you give your consent for AGMD to use them as part of all our awareness programs.

The Faces of Digestive Motility Patients and their Families

 

News from the TSA

The Association of Gastrointestinal Motility Disorders, Inc. (AGMD) is a member of the TSA Disability Coalition.

TSA Offers Special Escorts For Disabled At Orlando International Airport

TSA Cares Helps Travelers With Medical Conditions

TSA Travel Tips - Traveling With Medication

 

Ongoing Campaign

AGMD is committed to its campaign entitled, "On Tract with Hope ..." We have "Gut to Get Involved, Gut to Educate, and Gut to Make Others Understand." In 1991, AGMD was created as an international nonprofit organization bringing patients, family members, and those in the medical, scientific, and nutritional areas together. It is a privilege to serve and provide our ongoing campaign so more people will learn, understand, and become aware of this specialized area of gastroenterology.

 

AGMD Global Mission

AGMD understands the loneliness and isolation that patients and their families can feel. We understand the concerns, frustrations, and the emotional roller coaster that can accompany life with digestive motility diseases and disorders. We believe that education is key to empowering the motility patient as well as his/her family. We also believe that support is critical in helping the patient and his/her family cope. That is why we remain on a global mission of hope and help for all those in need.

 

AGMD Digestive Motility Impact

In one-second, someone's life will be changed and affected by a digestive motility disease or disorder. Symptoms are usually absent from comfortable social conversations and yet, they are very real and paramount in the sufferer's life. It can be challenging to balance all the emotional and physical consequences that may result from living with digestive motility diseases and disorders. Not being able to eat normally, maintaining employment, raising children, finding and keeping relationships, going to school, medical insurance issues, financial difficulties, and trying to live a quality life may all be a part of the patient and family member's struggles. Many feel very much alone, isolated, and frustrated because no one can understand what they are going through. It is the quest of AGMD to provide education, information, resources, support, and hope to all those impacted by digestive motility diseases and disorders.

 

This page was last modified on April 9, 2015

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