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Welcome
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Latest News

  • AGMD Digestive Motility Patient and Family Conference, July 29-30, Mass
  • Chronic Intestinal Pseudo-Obstruction Ongoing Genetic Studies
  • Join AGMD'S Monthly Patient and Motility Specific Telephone/Internet Groups
  • AGMD Lexington, MA In-Person Educational Support Group Meets Monthly
  • AGMD 25 Years Serving as a "Beacon of Hope" to those in need
Serving as a Beacon of Hope Since 1991
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Behind the Scenes

 

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Join AGMD

Describe the photo or the page it links toJoin our nonprofit international organization and receive membership benefits including newsletters, networking connection program, educational materials, programs, and other resources.

Stay Informed

Describe the photo or the page it links to Join our Email Mailing List to stay up-to-date on AGMD news, programs, and events taking place.

Clinical Trials

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Visit our Clinical Trials Page to learn more about trials that are currently recruiting participants.

Our Partners

AGMD encourages you to learn more about our corporate and organization partners and the services they provide.

Click here more information on our corporate partnership program.

CoRDS Registry

Describe the photo or the page it links toThe Coordination of Rare Diseases at Sanford registry is a national and central registry for people with a confirmed diagnosis of a rare disease.

Learn more about the Coordination of Rare Diseases at Sanford registry and enroll in their program to participate in clinical trials and other research opportunities. CoRDS Registry

AGMD Upcoming Events

We're Partnering With The Mighty!

We're thrilled to announce a new partnership that will bring our resources in front of The Mighty's wide-reaching readership. We will now have a growing home page on The Mighty and appear on many stories on the site.


The Mighty is a story-based health community focused on improving the lives of people facing disease, disorder, mental illness and disability. More than half of Americans are facing serious health conditions or medical issues. They want more than information. They want to be inspired. The Mighty publishes real stories about real people facing real challenges.


We're dedicated to helping people with digestive motility disorders such as chronic intestinal pseudo-obstruction, gastroesophageal reflux disease, achalasia, diffuse esophagel spasm, incontinence, chronic constipation, diarrhea, irritable bowel syndrome, and gastroparesis, in their lives. With this partnership, we'll be able to help even more people.

 

Twenty Five Year Milestone

AGMD has been honored to serve as a "Beacon of Hope" for 25 years! Thank you all for your support of our organization. You are the force behind AGMD and we are grateful to each and everyone of you!

 

Swollen and Wounded Bellies - Part One

View a glimpse of some swollen and wounded bellies as a result of digestive motility disorders. These are just some examples of the hidden reality of what patients may endure.

 
 


Genetic Neuronal Dysplasia or Chronic Intestinal Pseudo-Obstruction Study

Columbia University Medical Center is investigating the genetic causes of intestinal neuronal dysplasia and chronic intestinal pseudo-obstruction.

If you as well as other family members have been diagnosed with either disease and would like to participate in Columbia’s research study, please contact the Association of Gastrointestinal Motility Disorders, Inc. (AGMD). Your involvement might help researchers to develop better treatment for these GI illnesses.       

AGMD Contact Information
Maryangela DeGrazia-DiTucci.
Email: maryangela@gimotility-agmd.org
Telephone: (781) 275-1300

 

Help AGMD Continue Its Mission

" In one moment, someone's life will be changed because of a digestive motility disorder." These disorders can affect anyone at any age and occur at any time. The extreme and unpredictable symptoms can impact every aspect of the patient's life. The families of these patients are also greatly affected.

Many patients and their families endure a roller coaster of emotions as they struggle to live a life that involves the inability to eat normally, bathroom issues, and the mourning of the many losses that come from living with these often debilitating digestive disorders.

AGMD has been serving as a "Beacon of Hope" since 1991. Patients and their families rely on our nonprofit for much needed support, information, education, awareness, guidance and resources.

We hope you will remember AGMD with your generosity. When you donate, you will be making an incredible difference in the lives of those in need.

Ways to help

 

AGMD Patient/Loved Ones Telephone/Internet Community Support Groups

AGMD holds digestive motility Telephone/Internet Digestive Motility Community Support Groups. Our Patient Group is for all those suffering from any type of digestive motility disease/disorder. We also hold special programs specifically designed for Gastroparesis, Motility Disorders of the Esophagus, Chronic Intestinal Pseudo-Obstruction and Incontinence, which are open to patients and their loved ones. In addition, we have a program customized for parents. It is a great way to learn, gain support, share questions and concerns and talk about personal experiences living with digestive motility diseases/disorders.

New Young Adult, Spouse, Senior Citizen, and Newly Diagnosed groups will be implemented within the coming months.

View our calendar for program dates and times.

We welcome you to participate.

 

AGMD Young Adult Telephone/Internet Community Support Group

Join our AGMD Young Adult Telephone/Internet Community Support Group.

Our Young Adult group is open to those 18-35 years of age suffering from a digestive motility disease or disorder.

Andrew is our facilitator of the group. He has chronic intestinal pseudo-obstruction, gastroparesis, GERD, bladder retention, an enlarged stomach and small bowel bacterial overgrowth. He is also an Industrial Designer, Commercial Aerosol Artist, AGMD Volunteer Mentor and is a talented creator of photo/slide shows for our organization depicting life with digestive motility disorders.

Learn, share experiences, pose questions and concerns and gain much needed support. 

 

View Andrew's original video entitled, "Poem of Gratitude" where he shares some of the many blessings in his life

 

 

 

View Andrew's original video entitled, "Life Revolves Around Food" through his artistic talent.

Andrew Carbone, a young adult patient with CIPO, gastroparesis, GERD, bladder retention, an enlarged stomach and SBBO shares his artistic talent in describing life with digestive motility disorders and how so much revolves around food.

 

 

 

Functional Gastrointestinal and Motility Disorders Research Enhancement Act of 2015

H.R. 2311

This bill amends the Public Health Service Act to require the National Institutes of Health to expand, intensify, and coordinate its activities with respect to functional gastrointestinal and motility disorders (FGIMDs), including by:
expanding basic and clinical research into FGIMDs by implementing the research recommendations of the National Commission on Digestive Diseases, providing support for the establishment of centers of excellence on FGIMDs, supporting innovative approaches to educating health care providers and patients regarding strategies that improve patient-provider relationships and care, directing the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) to provide the necessary funding for the continued expansion and advancement of the FGIMDs research portfolio, and directing NIDDK and the Eunice Kennedy Shriver National Institute of Child Health and Human Development to expand research into FGIMDs that impact children.
The Department of Health and Human Services may engage in public awareness and education activities to increase understanding and recognition of FGIMDs.

 

This bill was assigned to a congressional committee on May 13, 2015, which will consider it before possibly sending it on to the House or Senate as a whole.

Introduced: May 13, 2015 (114th Congress, 2015-2017)

Sponsor: Rep. James Sensenbrenner Jr. [R-WI5]

Status: Referred to Committee

Text: Read Bill Text » (9 pages)

 

Need a Physician?

Are you in need of a digestive motility expert? If so, then we encourage you to visit our AGMD Physician Referral Listing Database.

Do you know of a motility expert who is not yet listed? Let us know so we can add them to our database. Any physician who would like to be included in our database is welcome to email us at digestive.motility@gmail.com.

 

Volunteer Opportunities

A great way to get involved is to volunteer. AGMD has volunteer positions for the professional as well as the lay person. Volunteering for AGMD requires a dedicated commitment. We offer flexibility realizing that illness can be a factor for patients and their families. We are also respectful of the time constraints of each individual volunteer.

Help make a difference by volunteering!

Click here if you are interested in volunteering for AGMD.

 

Newly Diagnosed?

Have you or your loved one been recently diagnosed with a digestive motility disease or disorder? If so, AGMD is here to help. We have many programs and resources available to assist you in your journey with digestive motility.

View our introductory presentation.

Upcoming Related Conferences/Symposia

If you would like your conference/symposium posted, please mail your information to maryangela@gimotility-agmd.org.

AGMD Digestive Motility Patient and Family Conference, July 29-30, 2016, Doubletree Bedford Glen Hotel, 44 Middlesex Turnpike, Bedford, Massachusetts

 

Swollen And Wounded Bellies

Does your abdomen become swollen/distended due to a digestive motility disease/disorder? If so, AGMD would love for you to submit a photo to be included in our "Swollen Bellies ... "photo show. It is our way of drawing more awareness, education, and understanding of what many patients experience.

Email your photos to maryangela@gimotility-agmd.org and write, "Swollen Belly" on the subject line. AGMD reserves the right whether to accept all photos and to edit pictures in order to comply with the specifications of the photo show. By submitting your photos, you give your consent for AGMD to use them as part of all our awareness programs.

 

The Faces Of Digestive Motility Patients And Their Families

Our "Faces Of Digestive Motility Patients And Their Families" photo show, helps others realize that behind all the symptoms, all the anguish, all the daily challenges, are human beings. Although the impact of digestive motility disorders infiltrates every aspect of a patient's life as well as his/her family's, their strength, courage, determination and faith shine through.

Help us in our mission of making others understand and become aware of digestive motility diseases by submitting your photos.

Email your photos to digestive.motility@gmail.com and write, "The Faces Of Digestive Motility Patients and Their Families" on the subject line. AGMD reserves the right whether to accept all photos and to edit pictures in order to comply with the specifications of the photo show. By submitting your photos, you give your consent for AGMD to use them as part of all our awareness programs.

The Faces of Digestive Motility Patients and their Families

 

Ongoing Campaign

AGMD is committed to its campaign entitled, "On Tract with Hope ..." We have "Gut to Get Involved, Gut to Educate, and Gut to Make Others Understand." In 1991, AGMD was created as an international nonprofit organization bringing patients, family members, and those in the medical, scientific, and nutritional areas together. It is a privilege to serve and provide our ongoing campaign so more people will learn, understand, and become aware of this specialized area of gastroenterology.

 

AGMD Global Mission

AGMD understands the loneliness and isolation that patients and their families can feel. We understand the concerns, frustrations, and the emotional roller coaster that can accompany life with digestive motility diseases and disorders. We believe that education is key to empowering the motility patient as well as his/her family. We also believe that support is critical in helping the patient and his/her family cope. That is why we remain on a global mission of hope and help for all those in need.

 

AGMD Digestive Motility Impact

In one-second, someone's life will be changed and affected by a digestive motility disease or disorder. Symptoms are usually absent from comfortable social conversations and yet, they are very real and paramount in the sufferer's life. It can be challenging to balance all the emotional and physical consequences that may result from living with digestive motility diseases and disorders. Not being able to eat normally, maintaining employment, raising children, finding and keeping relationships, going to school, medical insurance issues, financial difficulties, and trying to live a quality life may all be a part of the patient and family member's struggles. Many feel very much alone, isolated, and frustrated because no one can understand what they are going through. It is the quest of AGMD to provide education, information, resources, support, and hope to all those impacted by digestive motility diseases and disorders.

 

This page was last modified on September 16, 2016

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